OMERACT 2018 Modified Patient-reported outcome domain core set in the life impact area for adult idiopathic inflammatory myopathies

Regardt, M., Mecoli, C.A., Park, J.K., de Groot, I., Sarver, C., Needham, M., de Visser, M., Shea, B., Bingham, C.O., Lundberg, I.E., Song, Y.W., Christopher-Stine, L. and Alexanderson, H. (2019) OMERACT 2018 Modified Patient-reported outcome domain core set in the life impact area for adult idiopathic inflammatory myopathies. The Journal of Rheumatology, 46 (10). pp. 1351-1354.

Abstract

Objective. To present and vote on a myositis modified patient-reported outcome core domain set in the life impact area at the Outcome Measures in Rheumatology (OMERACT) 2018.

Methods. Based on results from international focus groups and Delphi surveys, a draft core set was developed.

Results. Domains muscle symptoms, fatigue, level of physical activity, and pain reached ≥ 70% consensus and were mandatory to assess in all trials. Domains lung, joint, and skin symptoms were mandatory in specific circumstances. This core set was endorsed by > 85% at OMERACT 2018.

Conclusion. We propose a life impact core set for patients with idiopathic inflammatory myopathies and will proceed with instrument selections.

Item Type:	Journal Article
Publisher:	Journal of Rheumatology Publishing Co. Ltd.
Copyright:	© 2019 by The Journal of Rheumatology
URI:	http://researchrepository.murdoch.edu.au/id/eprint/52016

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