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Oral history, ethics, intellectual disability and empowerment: An inside perspective

Gothard, J. (2010) Oral history, ethics, intellectual disability and empowerment: An inside perspective. Studies in Western Australian History, 26 . pp. 151-162.

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Ethical considerations are an important component of my present research project, which is an attempt to understand what it is like living with Down syndrome (hereafter DS) at the turn of the twenty-first century. By 'living' with DS, I mean, on the one hand, living with other people who have DS, but I am also seeking first hand accounts of what it is like to have DS. Interviewing individuals with a learning difficulty or an intellectual disability such as DS has attracted some attention from oral history practitioners, which has informed my own practice. My work differs from other writers, however, in that I have lived with DS for a number of years. In that sense, I am both researcher and informant in this project, which raises further ethical issues about the role of the implicated researcher.

Item Type: Journal Article
Murdoch Affiliation(s): School of Social Sciences and Humanities
Publisher: University of Western Australia. Centre for Western Australian History
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