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Acceptability of electronic patient reported outcomes in clinical care of HIV

Duracinsky, M., Jouannigot, J., Grace, A., Power, B., Desai, R., Lalanne, C., Herrmann, S. and Chassany, O. (2016) Acceptability of electronic patient reported outcomes in clinical care of HIV. Value in Health, 19 (7).

Free to read: http://dx.doi.org/10.1016/j.jval.2016.09.2040
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Abstract

Objectives
The aim of the study was to assess user acceptability in patients and caregivers with an electronic application designed to input patient reported outcome (ePRO) data, in this instance, the health-related quality of life instrument PROQOL-HIV, prior to clinical consultation. A feature of the application will enable the transfer of ePRO data into clinical software and the patient’s medical record. The aim being to systematically collect ePRO data that can be referenced during a clinical consultation.

Methods
Thirty-six semi-directive interviews were conducted in several hospitals in France and a private clinic in Australia to determine the initial user acceptability of such an application. In the first part of the interviews researchers described the purpose of the application and questioned patients (n=25) and doctors (n=11) about their computer usage habits and capabilities, their views on envisaged benefits or harms.

Results
The patients’ showed interest in using electronic health applications in general and in the potential capabilities of the prototype that was demonstrated. Patients envisaged an ‘efficiency gain’ for themselves and for the doctor if the volume of data transmitted was not ‘overwhelming’. Many of the doctors were already using eHealth applications. The application was perceived as potentially time saving during medical consultations but on the other hand could be time consuming if data was voluminous. Doctors asked for a clear presentation of meaningful scores. Confidentiality was a major concern for French patients, particularly migrants; and doctors, but was less striking among Australian interviewees who had confidence in data protection processes.

Conclusions
The qualitative study was an important part of the app development. Integration of user’s opinions on different aspects of the app such as confidentiality and the result presentation should make the development more efficient.

Publication Type: Journal Article
Murdoch Affiliation: School of Arts
Publisher: Elsevier
Copyright: © 2016 Published by Elsevier Inc.
URI: http://researchrepository.murdoch.edu.au/id/eprint/36458
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