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188th ENMC International Workshop: Inclusion Body Myositis, 2–4 December 2011, Naarden, The Netherlands

Rose, M.R. and Needham, M. (2013) 188th ENMC International Workshop: Inclusion Body Myositis, 2–4 December 2011, Naarden, The Netherlands. Neuromuscular Disorders, 23 (12). pp. 1044-1055.

Link to Published Version: http://dx.doi.org/10.1016/j.nmd.2013.08.007
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Abstract

The 188th ENMC workshop titled “Inclusion Body Myositis” was held in Naarden, The Netherlands, 2–4 December 2011. The workshop received supplementary funding from the Myositis Support Group UK. This workshop aimed to build on the work of two previous IBM workshops held in the MRC Centre London 2008 and Paris 2009 [1] and [2]. Its aims were to (1) review the diagnostic criteria for IBM, (2) foster future collaborative working in immunological and genetic IBM research, (3) review natural history studies and clinical trial protocols, (4) review the current status of clinical trials outcome measures and map the processes required to improve these, (5) establish the requirements for a global IBM registry, and (6) to scope the work required for the establishment of standards of care for IBM.

The workshop was attended by 24 representatives from UK, France, Germany, Belgium, Netherlands, Sweden, Denmark, Australia and USA. Participants included neurologists, rheumatologists, physiotherapists, industry representatives and patient representatives.

Publication Type: Journal Article
Publisher: Elsevier BV
Copyright: © 2013 Elsevier B.V.
Other Information: Merrilee Needham appears as part of the ENMC IBM Working Group
URI: http://researchrepository.murdoch.edu.au/id/eprint/33246
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